About Leigh Syndrome is here to provide you with an opportunity to connect, learn, find resources, strength and courage to live your best life.

Leigh syndrome is a rare and severe neurometabolic disorder with symptoms usually starting between the ages of 3 months and 2 years. Leigh syndrome can also occur in teenagers and adults, although this is less common.

Newborns with Leigh syndrome seem healthy at birth, and may reach major milestones on time. Yet the disease begins interfering with function of the central nervous system. That is why children with Leigh syndrome lose these abilities or experience other physical or developmental delays.

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