BETA

Baszucki Group

We partner with scientists and innovators across the biomedical research and venture ecosystem to promote the development and delivery of metabolic approaches to brain health.

Headshot of Jan Ellison Baszucki

Jan Ellison Baszucki

President / BASZUCKI GROUP / https://baszuckigroup.com/

Jan acts as president of Baszucki Group. A former Silicon Valley fintech marketing executive, Jan is a writer, parent, mental health advocate and aspiring citizen scientist. She is the author of the national bestselling debut novel, A Small Indiscretion, which was a San Francisco Chronicle recommended book of 2015. Her essays have appeared in publications like The New York Times, The Wall Street Journal and Writer’s Digest, and her short fiction has received numerous awards, including an O. Henry Prize for her first published story.

Cure Mito Foundation

Cure Mito Foundation is a patient advocacy group led by the parents of families affected by Leigh Syndrome. Mission of Cure Mito is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.

Headshot of Sophia Zilber with green polkadots in the background

Sophia Zilber Volunteer

Director, Patient Registries & Patient Data Standards

Sophia has over 20 years of experience with drug development, including clinical data analysis, and managing statistical programming teams to ensure successful delivery of clinical study analysis requirements. After losing her newborn daughter, Miriam, to a rare disease, Leigh syndrome in 2017, Sophia volunteered her time and experience to help the rare disease community. Sophia has been involved in multiple efforts with the goal of raising awareness in the mitochondrial disease community and general rare disease community regarding patient registries and what is involved with collecting high quality data that can be used for research. Sophia is proud to be a board member and a patient registry director for Cure Mito Foundation, where she is leading a global Leigh syndrome patient registry.

Levine Media Group

Levine Media Group specializes in taking complex ideas at the intersection of business, policy, and science and making them accessible to targeted audiences. We convince policy makers, excite investors, motivate employees, reach out to patients, and provide life sciences companies with strategic content to achieve their goals.

MitoAction

Since 2005, MitoAction has transformed the lives of families affected by mitochondrial disease. Our mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease. Committed to making the largest impact possible, MitoAction serves individuals in the U.S. and around the world through support, education, outreach, advocacy, and clinical research initiatives. The programs and services MitoAction provides continue to be a lifeline for families impacted by mitochondrial disease. Families know with MitoAction, they will never be alone on this difficult journey. Learn more at www.mitoaction.org.

MitoCanada

MitoCanada is energizing lives. Our foundation is dedicated to creating a world where all lives are powered by healthy mitochondria. Whether you are currently living with, or are at risk of developing, a mitochondrial disorder, MitoCanada is here to support you on your journey. We rely on the collective energy of the MitoCommunity to reduce the devastating impact of mitochondrial disease and offer hope.

Headshot of Kate Murray

Kate Murray

CEO / MITO CANADA / https://mitocanada.org/

Kate has extensive experience working with early start-up businesses and pivoted into not-for-profit after founding her own national children’s charity – created after her son was diagnosed with a complex, chronic illness at the tender age of 5.

Kate joined MitoCanada in 2020 as CEO and President, leading their efforts in supporting mitochondrial disease research in Canada, connecting and engaging with mito patient and scientific communities, driving the creation of impactful support and education programming and advocating for the needs of Canadians affected by mitochondrial disease at both provincial and federal levels. Kate joined the Canadian Digestive Health Foundation, working for this health organization for five years as Director of Business Development, Stakeholder Engagement Officer and Vice-President of Partnerships and Programs.

In a continued effort to give back to the healthcare community that supported her son, Kate volunteers her time in many different capacities at the Hospital for Sick Children in Toronto. She is a member of the Family Advisory Network, a member of the Diagnostic Imaging Committee, a Quality Management patient-partner and a member of the Interprofessional Patient Care Committee (IPPCC), which oversees the review of hospital-wide policies and patient care guidelines.

Newton Street

Newton Street is a women-led communications agency that partners with innovators seeking transformative change. We serve global health organizations, philanthropies, high-profile individuals, family offices, for-profit companies, and social impact organizations tackling some of the world’s most complex issues.

Headshot of Amy Enright

Amy Enright

President and Founder of Newton Street, works with innovators seeking to change the world in big and surprising ways – especially in the areas of climate, health, education, economic opportunity and democracy. She believes that global cooperation, bold thinking, and disruptive solutions are required if the world is to address the most pressing challenges of our time.

Prior to founding Newton Street, Amy worked at the epicenter of global health and development for 14 years at the Bill & Melinda Gates Foundation, most recently as the head of media relations. She led a high-performing team of communications professionals around the world in support of over a dozen major resource mobilizations for global partnerships such as Gavi, the Global Fund, and COVAX. She drove top tier media engagement across annual events, including the World Economic Forum at Davos and the UN General Assembly.

Linkedin

Newton Street Public Relations

UC Santa Barbara Center for Aging and Longevity Studies (CALS)

The Center for Aging and Longevity Studies (CALS) seeks to improve the human experience by augmenting healthspan, ameliorating age-related diseases, advancing the vitality of an aging population, and investigating the societal impact of extended longevity through research, education, and public outreach.

World Mitochondria Society

The World Mitochondria Society emerged seamlessly out of a series of yearly conferences organized since 2010 by the International Society of Antioxidants in Nutrition and Health under the leadership of Prof. Marvin Edeas.

Portrait of Volkmar Weissig wearing a light blue collared shirt with a blue necktie

Volkmar Weissig, Sc.D.., Ph.D.,

President / WORLD MITOCHONDRIAL SOCIETY /  https://wms-site.com/

President / WORLD MITOCHONDRIAL SOCIETY /  https://wms-site.com/

Volkmar WeissigPhD,  Sc.D.., Ph.D., Professor of Pharmacology (Tenured); Professor of Biomedical Sciences; President World Mitochondria Society; Editor-in-Chief J Liposome Research; SAB Chair MytoLyfe Therapeutics